Ugh! Our schedule is so busy right now and it won’t stop until the end of April. This is our weekly schedule:
Monday – soccer practice 6-7:15
Tuesday – baseball games starting at 7 pm
Wednesday – our ONLY Free Night
Thursday – soccer practice 6-7:15
Friday – baseball games starting at 7 pm
Saturday – soccer game
Sunday – soccer training 4-6 pm
H and I are 30 minutes away from home, so it’s not like we can run home real quick and grab a bite to eat and she’s not supposed to eat too much before practice because then her stomach hurts, so we end up grabbing something after practice because if we wait until we get home it is after 8 pm. That is too late to be eating in my opinion.
On baseball game nights, if the game is at home than we can eat something at home, but on the away nights it’s either concession stand food or eating with the team afterwards.
I don’t know what we can do because my budget and my diet can’t afford to keep eating out and there is only so much Subway I can take.
Last weekend was the first baseball tournament of the season. It was also the first time that H and I were home by ourselves since we moved here in October. Jason left Thursday during the day and returned home late Saturday night/early Sunday morning.
The first two days of the tournament were great for the team. They won all four games and were scheduled to play in the championship game Saturday evening against the #2 team in the Valley. H and I didn’t have anything else going on and were planning on traveling to the game. Thankfully, the head coach’s wife was also heading down there, so we tagged along with her and her kids.
The championship game did not have the outcome we were hoping for. We did have two homeruns, but it wasn’t enough to even have a close game. The boys never gave up during the game and didn’t seem to upset afterwards. They have two more tournaments coming up, so it should be fun.
H and I won’t be able to attend any games of the next tournament because she has a soccer game on Saturday. Prior to H being involved in soccer, we were at every possible game and tournament, but now her schedule has priority over Jason’s games.
Our schedule is very busy during the spring, but I wouldn’t have it any other way.
When my journey with breast cancer started, I realized that there was a ton of information out there, so I didn’t know where to start. I didn’t have much time to process the DCIS before I was in surgery and having the cancer removed. Afterwards, all I had to do was wait for my genetic test results. I didn’t find out about these books until after I received the news that I carried the gene, but hopefully, I can help others know where to turn.
My friend, Justine, told me about a book her friend had mentioned. What We Have: A Family’s Inspiring Story About Love, Loss, and Survival by AmyBoesky. I haven’t had a chance to read all of it, but so far it has really touched me. The author was only 32 at the time she wrote the book, so our ages aren’t too far apart. The main difference is that she didn’t have cancer, just the gene, so I guess that’s why I haven’t finished reading it. My situation is just a little bit different.
While I was looking on Amazon at What We Have, I looked through the other suggestions and came across Positive Results: Making the Best Decisions When You’re at High Risk for Breast or Ovarian Cancer by Joi L. Morris and Ora Gordon. This book saved my sanity. I was reading it up to the moment we walked into the oncologist office. I didn’t want to just skip ahead to the chapters I thought I needed to read, so I was reading so fast because I wanted to get to the chapter about understanding the genetic test results. Finally I had something in writing that explained in plain English what my results meant. I also realized how important a genetic counselor is in this process. I am so frustrated with my gynecologist for not referring me to the only genetic counselor in Corpus Christi. Instead, he chose to have the blood drawn and sent off and then never explained the results. Yesterday, I met with my surgeon and he is going to send me to the genetic counselor because there are still some things we need to talk about like when to tell Haley and when she should be tested. I don’t have that appointment, yet, but I’m getting my questions ready.
The third book I purchased for my Kindle was Previvors: Facing the Breast Cancer Gene and Making Life-Changing Decisions by Dina Roth Port. I’ve read a few of the chapters, but haven’t finished it, yet either. This book documents 5 ladies who all carry the breast cancer gene either BRCA I or BRCA II. I know that I will pick it back up again soon, but I’m trying to finish the other books I am reading right now.
I hope that if you are ever facing the decision to get tested for the BRCA I or II gene that you find a genetic counselor and also check out these books. I’m sure there are plenty of others out there, but these are the top of my reading list.